Redditoru/Ferocious_Kittyroseasked, "Physically disabled users of Reddit, what are some less commonly talked about struggles that come with your disability?" Here are 18 of the most commmon answers they shared:
1。“令人发指的需要始终在浴室附近。您不会想,但是很多地方没有浴室,它确实限制了您可以去哪里以及您如何进行社交。这是非常有限的。”
![在城市中的餐厅或零售店没有公共洗手间店面标志。“class=](https://img.buzzfeed.com/buzzfeed-static/static/2022-10/11/18/asset/4ba76394ee80/sub-buzz-1130-1665511456-28.jpg?downsize=700%3A%2A&output-quality=auto&output-format=auto)
“如果有浴室,我的一生都计划在围绕着,人们并没有真正考虑这是多么局限。起身去。开车很长的距离是一种压力很大的体验 - 如果您要去的话,高速公路最近的浴室在哪里?一些随机加油站?我会及时做吗?最好待在家里,在哪里有一个易于进入的浴室始终。我不能去参加厕所的音乐会或游戏,因为我等不及了。主题公园也有同样的问题。”
2。“How drained you feel when there's a flare up. My intestines were giving me trouble this morning, and I had to take a nap when it was over because bracing against the pain expends a lot of energy."
3。“不(总是)能够说出何时疾病或受伤足以需要医疗护理。当'恶心,疲劳和明显的痛苦''只是您的持续状态,这并不容易知道何时更糟糕的事情可能正在发生,或者您只是爆发不好。”
“当我被问到时,我两次在急诊室里做其他事情,'你知道你有肾脏感染吗?'不,女士,我没有。”
“When COVID hit, I was like, wait, I have those symptoms on/off all the time (including fevers), and if I need to not expose others, then I’m really not safe to go anywhere until I KNOW. I still haven’t caught it, knock on wood, which is great because it would likely kill me. But people still get angry when I explain that recent strains are 20x more contagious than before so yes, both of us wearing a mask matters for my condition"
4。“Accessibility gets talked about, but you know what gets me? Shitty accessibility. For example, steep ramps. Fucking hell, I am not that buff and strong, my shoulders dislocate under force. Your thirty degree ramp is fucking terrifying."
“这些坡道对于使用助行器/拐杖/拐杖的任何人来说也很恐怖。特别是如果它们在多个方向上倾斜或人行道保持不善。几乎每次我在公开场合跌倒时,都因为设计不佳,没有保持坡道。”
5。“The fact that it's hard to keep friends because you have to cancel last minute so often. It's not that I don't want to go. Iso want to go!But, my body said no. Only the best of friends stick around after years of this."
6.“我父亲是盲目的。很多家用电器一直从具有明确不同功能的物理旋钮和按钮来触摸屏幕面板,有些甚至没有任何类型的声音或触觉提示,可以让该人知道。”
“触摸屏对于那些用手震颤和本体感受(位置意义)问题的人也绝对吸引人。如果您错过了物理按钮,那就没问题了;只需将手指滑到需要的位置并推动。如果您错过了一个触摸屏,操你,你要去触摸到哪里送你的地方。”
7.“我不能吃很多食物。当我不得不拒绝食物时,人们会变得如此沮丧。他们是这样个人的,就像是,伙计,我只是不想让血液酸痛,感到很糟糕下周。这与您无关。当您突然无法吃很多食物时,您意识到有多少食物融入了社交化。工作,约会,活动等。人们看着您,就像您是个怪胎如果你不加入食物,那就太糟糕了,那伙计。”
8.“要做比身体上更多的压力。我的所有残疾都是看不见的(胃轻瘫和癫痫病),感觉就像我一生中太多的成年人都不明白我不能做到他们认为自己能做的尽可能多的事情。例如,我的两个父母都喜欢告诉我“尽我所能”,但看不到我已经做过。由于严重的胃痛,我很难长时间站立,所以我有一个照顾者可以让我做饭和清洗(我非常感谢)。感觉他们希望我一天能尽我所能,但不明白他们实际上在问我。”
“If a normal healthy person gets sick for a few days they can usually get themselves food and water and might have to push through the pain to be able to survive. But I'm constantly sick. If I tried to do that kind of stuff, I would be miserable all of the time, instead of having some energy to sit up or be able to talk to people or go outside sometimes.
I just hate that it feels like I'm treated like I'm 'giving in' to the pain or not trying hard enough. I just don't think they understand what that would mean for me or that 'trying hard enough' won't fix my condition or make me feel better in any way.'
“你不能只是在'疲劳中'奋斗。仍然与洗衣,烹饪,清洁,喂猫等大量时光。”
9.“The number of random people who will grab or lean on my wheelchair without permission (when I’m in it) would shock you."
“I've seen people in public just push someone in a wheelchair out of their way without asking, as if they were moving an inanimate object."
10。“I am disabled and a part-time forearm crutch user. I have been accused of doing this to get attention because I'm young and I don't 'look' disabled."
“回到我年轻的时候,我坐了轮椅,我让某人试图将我翻转出来,因为他们坚持认为我由于年轻而实际上无法残疾。那时我才十几岁。”
11。“将大菜单放在现金登记册的范围内。我有视力问题,我一直想知道它是否给人以正常的视力问题。”
12。“社交方面。这么多人生气,就像我不是充分残疾使用我需要的任何帮助。但是我花了更长的时间才能从过度劳累中恢复过来。这让我想将人们存入太平洋中间。仅仅因为他们从技术上可以踩水三天,并不意味着他们应该这样做,或者他们将在第二天上班。”
13。“从对我的身体一无所知的人那里获得未经请求的建议。我从字面上花了所有时间来管理自己的病,我不需要您告诉我看到您的魔术水晶红外自然疗法,因为A)赢了't工作,b)我无论如何都没有精力,c)我花了所有的时间,金钱和精力来追求科学干预措施。我意识到人们认为他们有帮助,但最好的帮助是倾听。“
14。“Even with the ADA, there are still places that aren't wheelchair accessible, so you kind of get into the habit of calling ahead and asking or looking online. A depressingly large amount of holiday attractions aren't accessible, for example."
15。“Urinary incontinence and the cost associated with it. Many people with my condition struggle with incontinence, but we don’t talk about it! I’ve had incontinence since I was 12 years old. I was so embarrassed that I didn’t tell anyone for years. I had to buy diapers behind my parent's backs. I also always smelled really bad. The diapers would leak or the pads I used would fall off, so I would just leak urine all the time. It was so embarrassing. I would have to change my pants multiple times a day to not smell."
“Well, I consulted a doctor and there’s nothing they can do for me. I’m 22 now, and have lost almost complete control of my bladder. People don’t understand that leaks are inevitable and happen occasionally. I get absolutely roasted for having them. My friends still make comments to me when I buy diapers and thick urinary pads, despite knowing my condition.People only accept disability until it’s embarrassing.
更不用说费用了。我是一个独自生活在洛杉矶的22岁大学生。唯一不会泄漏的品牌的10个尿布为28美元。考虑一下您一天使用浴室多少次……是的。那只是我残疾的一笔费用。还有更多。”
16。“您的伴侣'如何真的很棒'通过您的健康问题与您在一起。为什么?为什么要变得伟大?因为我残疾了?显然我没有为这种关系带来任何好处。”
17.“That by default, you feel excluded from society, no matter how nice people are to you. Assuming there are mobility issues, just catching up with friends becomes difficult because there's too much effort for the other person to make to meet you. You cannot be spontaneous with your plans at all."
18.最后,“有一种方法可以使人变得身体和10,000种残疾的方法。帮助一个残疾人的事情实际上可能是其他人的问题。许多人认为“残疾”意味着在轮椅上或盲目的轮椅上意味着,但是还有很多其他方法。”
感谢这些善良的人分享他们的经验,并帮助我们成为更好的朋友和支持者。如果您觉得此列表中有任何内容,并且您可以分享很舒服,请在下面的评论中告诉我们有关它的信息。
Note: Submissions have been edited for length and/or clarity.